Interstitial Lung Disease

Coding system
CTV3 (Read V3) with TPP extensions
Codelist ID


These codes indicate a diagnosis of interstitial lung disease (ILD)


This list was derived from a broader openSAFELY list that includes diagnoses of chronic respiratory disease excluding asthma. The broader list was derived from Read V2 codelist provided by the London School of Hygiene and Tropical Medicine.

Note: This code list excludes codes for most secondary interstitial lung disease. Please see the GitHub issue for discussion.


Signed off by

  • Henry Drysdale, EBM Datalab (May 12, 2020)
CTV3ID CTV3PreferredTermDesc CTV3Source
23E5. O/E - fibrosis of lung present High_Level_SNOMED
AD52. Sarcoidosis of lung with sarcoidosis of lymph nodes CTV3Map_Code_And_Term
H563. (Fibros alveolitis: [idiopath][cryptog]) or (Hamm-Rich synd) CTV3_Children
H5631 Diffuse interstitial pulmonary fibrosis CTV3Map_Code_And_Term
H563z Idiopathic fibrosing alveolitis NOS CTV3Map_Code_And_Term
H57y2 Pulmonary sarcoidosis CTV3Map_Code_And_Term
X102u Pulmonary fibrosis CTV3Map_Code_And_Term
X102v Usual interstitial pneumonitis CTV3Map_Code_And_Term
X102v Usual interstitial pneumonitis CTV3Map_Code_Only
X1043 Stage 1 pulmonary sarcoidosis CTV3_Children
X1044 Stage 2 pulmonary sarcoidosis CTV3_Children
X1045 Stage 3 pulmonary sarcoidosis CTV3_Children
X1046 Stage 4 pulmonary sarcoidosis CTV3_Children
X1048 Necrotising sarcoid granulomatosis CTV3_Children
XaXlE Respiratory bronchiolitis associated interstitial lung dis High_Level_SNOMED

Codes in the definition are underlined. Codes in the full codelist are in blue. Related codes not in the codelist are in black.